Ok. So lots of doctors appointments this week. One every day actually.
Monday: Trip to Dr. Cody's to see about some swelling on the stomach. The swelling wasn't anything to be concerned about, but Dr. Cody expressed to Mama that she wasn't 100% sure about the new diagnosis.
Tuesday: Back to Dr. Cody's for chemo, but no chemo was actually administered. Dr. Cody informed Mama that with the neuroendocrine cancer there are two types: fast and slow growing. Unfortunately, she has the fast growing. Dr. Cody has conferred with Duke and M.D. Anderson and has been told that there are only 3 types of chemo drugs for this fast growing neuroendocrine cancer. One of those drugs has a risk of further damaging her liver. And being that this cancer is so rare, the 3 drugs are somewhat older and offer rougher side effects- hair loss, vomiting, etc. So overall, Tuesday didn't exactly bring good news.
Wednesday: Back to Dr. Cody's to starts the new chemo. After being pumped with a little bit of steriods, antinausea drugs and some saline, the new chemos were administerd. So far, no bad side effects- thankfully. Also, the oncologist's nurse practioner came up to Mama today and said, "You know you're already a little miracle. Never have I seen someone with such a poorly functioning liver that is operating so well!" So thank God for that! Also some good news, Dr. Cody is conferring with a neuroendocrine specialist at Stanford and Johns Hopkins about Mama's cancer- seeing if they offer any kind of specialized treatment or clinical trials, etc. So hopefully we'll hear more back from them soon.
Mama is still in good spirits and is so thankful for the help that we have been receiving.
Also- if you are local and close to us, PLEASE join us Friday (August 14th) at 7 pm for a prayer vigil. The vigil will be held at Calvary Chapel, which is on the frontage road right off of 501 heading into Myrtle Beach. The building where Jammin' Leather used to be is the location you'll look for. Please come if you can!!
Keep praying!
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Continuing our prayers for you all. We love you!
ReplyDeleteBrantley, Matthew & Jackson
I will not be able to attend, sorry. My Dad's last night in town and we are taking him out to dinner. I will be praying for all of you at 7pm!
ReplyDeleteJ.F. Geschwind, M.D.
ReplyDeleteProfessor of Radiology, Surgery and Oncology
This is the doctor you want at Johns Hopkins, experienced with neuroendocrine cancers that began in the colon and have metastasized to the liver:
Director, Vascular and Interventional Radiology
Johns Hopkins University School of Medicine
600 North Wolfe Street, Blalock 545
Baltimore, MD 21287
Phone: 410-614-6597
Fax: 410- 955-0233
e-mail: jfg@jhmi.edu
Sorry, this is the correct information:
ReplyDeleteJ.F. Geschwind, M.D.
Professor of Radiology, Surgery and Oncology
Director, Vascular and Interventional Radiology
Johns Hopkins University School of Medicine
600 North Wolfe Street, Blalock 545
Baltimore, MD 21287
Phone: 410-614-6597
Fax: 410- 955-0233
e-mail: jfg@jhmi.edu
Dear Lori,
ReplyDeleteYou and your family have been in my prayers since I heard of your diagnosis and the battle you are fighting...If I can do anything for you, or your family, please have someone let me know...I can't thank you enough for helping me and encouraging me with my returning to school to become a nurse...it was a blessing and a comfort to see someone that I knew when I went to enroll.
Much love and prayers,
Amy Sanders
The prayer time was a blessing!! Hope you could feel those prayers!
ReplyDelete